BREAKING BARRIERS

NORD Medical Foods Assistance Program for Patients with Phenylketonuria (PKU) 

The National Organization for Rare Disorders (NORD) Medical Foods Assistance Program for Patients with Phenylketonuria (PKU) is now accepting applications for financial support. The program is a new safety net that provides financial support for PKU patients without benefit coverage to obtain their preferred medical food (limited to amino acid modified products that contain a synthetic source of protein and exclude phenylalanine). Funding is limited and patients must meet the following criteria:

• Diagnosis of PKU via written attestation by physician
• Residents of the United States and its territories
• Documentation demonstrating exhaustion of available state assistance and/or denial of insurance coverage for medical foods
• Income up to 500% of Federal Poverty Level (based on family size)

To apply for the program, please download this form, fill it out, and fax it to 203-798-2964, or mail it to:

NORD
55 Kenosia Avenue
Danbury, CT 06813

To obtain more information on the NORD Medical Foods (PKU) Program, call 1-866-924-0100.

NORD Medication Assistance Programs

Since 1987, NORD has administered programs to assist uninsured or under-insured individuals in securing life-saving or life-sustaining medications. In addition to the estimated 50 million Americans who have no health insurance, an increasing number of insured individuals have policies that do not reimburse for prescription drugs. Others have policies with low annual caps on prescription drug expenditures. The there are others whose income is too high to qualify for Medicaid but too low to pay for their prescribed medications.